Returning To Work Post-Stroke: What You Need To Know

Returning to work after a stroke is a big decision and a challenging transition for many people. The recovery process after a stroke is different for everyone, and it can be difficult to know when you're ready to go back to work. It's important to take things at your own pace and seek support from your doctor, therapist, and employer. Planning ahead can help you through the process, and resources are available to help you make short- and long-term plans and monitor your progress.

Planning your return to work

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Look at going back to work as part of your recovery

Returning to work after a stroke is a big decision and a significant change. It is important to remember that going back to work is part of your recovery, not the end of it. It can give you a sense of purpose and focus, provided you can cope with the demands of the job. It is also important to not rush back to work too quickly.

Identify when you are ready to return

The time it takes to return to work depends on the effects of your stroke, the type of care and support you received, the work you were doing before, and the amount of support your employer can give you. It is important to take things as they come and follow any treatment or rehabilitation therapy you have been given.

Talk to your employer about your needs and adjustments

Your employer should work with you to identify your needs and what adjustments they can make to help you. You may need to ask for reasonable accommodations, especially if your stroke has left you with a disability.

Consider a phased return to work

A phased return to work means a gradual return, starting part-time and building up to full-time hours. This can help you ease back into work gently and manage any fatigue you may be experiencing. It is also important to be aware of how this may affect any benefits you have been claiming and to inform the relevant authorities of changes to your circumstances.

Create a return-to-work plan

A return-to-work plan details your support needs and helps you manage the effects of the stroke. It should include a summary of the effects of your stroke and practical steps to address them, your tasks and hours of work, and a review process to help you and your employer see how things are going.

Communicate with your colleagues about your stroke

You may feel nervous about how your colleagues will react to you and the fact that you had a stroke. Remember that it is your choice whether to discuss your stroke with them, but being open and answering questions can help people understand and be more supportive. Explain what a stroke is and how it has affected you, especially if the effects are "hidden".

Adjustments and accommodations

Returning to work after a stroke is a big decision and a challenging transition. The recovery process after a stroke is different for everyone, and it is important to consider your own limits and the severity of your stroke. Here are some adjustments and accommodations to keep in mind when planning your return to work:

Phased Return to Work:

A phased return to work is often recommended, which means gradually returning to work part-time and building up to full-time hours. This allows you to ease back into work at a comfortable pace without overwhelming yourself.

Travel and Commute:

Travelling to work can be tiring, especially if you have a physical disability or sight loss. Consider trying out the commute on a non-work day to assess how manageable it is. You may also want to explore alternatives such as working from home, accessing funding for travel, or taking advantage of public transport discounts.

Driving:

After a stroke, there are legal restrictions on driving. In most cases, you will not be allowed to drive for at least one month, and the timeline after that depends on the type of stroke, your disability, and your driving licence. If your job involves driving, you may need support with career changes and job seeking.

Occupational Therapy and Vocational Rehabilitation:

Occupational therapists can help you set realistic goals and advise on aids or equipment you may need in the workplace. Additionally, vocational rehabilitation professionals can assist in preparing you for your return to work and addressing any work-related challenges.

Employer Communication and Accommodations:

It is important to maintain open communication with your employer about your needs and limitations. They are legally required to provide reasonable accommodations for employees with disabilities. Discuss with them the adjustments they can make to support your return, such as providing equipment, modifying tasks, or offering flexible work arrangements.

Return-to-Work Plan:

Creating a detailed return-to-work plan can help you and your employer manage expectations and make the transition smoother. This plan should include information about the effects of your stroke, the tasks you can perform, the hours you can work, and any adjustments or accommodations that need to be made.

Regular Reviews and Feedback:

Implementing regular reviews with your employer will help you monitor your progress and make any necessary changes. It provides an opportunity to discuss how you are managing your tasks, address any concerns, and receive feedback from your employer.

Emotional and Behavioural Changes:

A stroke can have emotional and behavioural impacts, and it is important to be prepared for these. Counselling or emotional support services, either through your organisation or external sources, can help you manage these changes and provide additional support during your transition back to work.

Remember, each person's experience with returning to work after a stroke is unique, and you should focus on your individual needs and capabilities. By planning ahead, seeking support, and making the necessary adjustments, you can increase your chances of a successful return to the workplace.

Emotional and behavioural changes

Returning to work after a stroke is a big decision and a major change. It is important to consider the emotional and behavioural changes that can occur after a stroke, as these can impact your ability to return to work and the support you may need.

A stroke is a sudden and shocking event that can affect every part of your life. The impact of a stroke varies from person to person, and it is important to recognise that everyone reacts differently. Emotional changes can include feelings of anxiety, tearfulness, and frustration. Behavioural changes may include increased irritability or becoming shy due to a lack of confidence. These changes can make it difficult for people to cope and may prevent them from returning to work.

It is crucial to seek support and make a plan for managing these emotional and behavioural changes. Here are some tips to help you navigate these challenges:

• Frequent reviews: Regularly meet with your employer to identify issues early on and put necessary changes in place. This allows for a more dynamic approach to your return-to-work plan, ensuring that your needs are met and adjustments can be made as you progress.
• Counselling and emotional support: Ask your organisation if they offer counselling or emotional support services. Alternatively, your GP can provide information about emotional support services and counselling options available to you.
• Therapy and rehabilitation: Following a stroke, you may have access to various health professionals, including occupational therapists, speech and language therapists, and vocational rehabilitation specialists. These professionals can help you set realistic goals and provide the necessary support for your return to work.
• Financial support: Research the financial support you may be entitled to, such as benefits like Universal Credit or Personal Independence Payment (PIP). Understanding your financial options can reduce stress and provide security during your recovery.
• Gradual return to work: Consider a phased return to work, starting part-time and gradually increasing your hours. This allows you to ease back into work and adjust to the demands of your job.
• Open communication: Keep open lines of communication with your employer and colleagues. Be transparent about your needs, the effects of your stroke, and any adjustments that may be required. This can help foster a supportive work environment and ensure that your employer and colleagues understand your situation.
• Emergency plan: It is important to have an emergency plan in place in case you experience another stroke while at work. Educate your coworkers about stroke symptoms and the importance of immediate medical attention.
• Support from colleagues: If you feel comfortable, consider sharing information about your stroke with your colleagues. This can lead to a more supportive work environment and help them understand any "hidden" effects of your stroke, such as fatigue or cognitive problems.
• Designated support person: Discuss the possibility of having a designated person or "buddy" at work who can provide day-to-day support and understanding.
• Connect with other stroke survivors: Talking to other stroke survivors can help you feel less isolated and provide valuable insights and encouragement as you navigate returning to work.

Remember, recovery from a stroke is a unique process for everyone, and it is important to seek professional advice and support tailored to your specific needs.

Financial support

Returning to work after a stroke is a big decision and a challenging process. It is important to take things as they come and follow any treatment or rehabilitation therapy. Planning ahead can help you through the process.

Benefits and Grants

Financial help may be available through the benefits system. You can also get help from your employer, local council and other organisations. There are many different types of benefits available, including:

• Universal Credit is the main benefit for people who are out of work or on a low income. It covers income, housing costs and disability payments.
• Statutory Sick Pay (SSP) is the basic level of sick pay set by the UK government. Some employers may pay on top of SSP.
• Employment and Support Allowance is for those who are off work due to a stroke.
• Personal Independence Payment (PIP) helps meet some of the extra costs of long-term illness or disability. It is not means-tested, so you can claim it while working.
• Carer's Allowance is available for those who are caring for someone after a stroke.

Loans and One-off Payments

You may be able to get help with one-off expenses, such as grants and Budgeting Loans. There are also loans and grants available for home adaptations if you have a disability.

Bills and Other Costs

There is support available to help with other costs, such as council tax, prescription charges, household bills and energy bills. You may also be entitled to free or reduced health costs.

Where to Get Advice

There are many organisations that can provide individual advice on benefits and finances, including:

• Citizens Advice
• Money Helper
• Age UK
• Carers UK
• Disability Law Service
• Independent Age
• Scope
• Step Change

There are also online benefits calculators and grant finders that can help you understand what support is available, such as Turn2Us.

Travel to work

Travelling to work can be tiring, especially if you have a physical disability or sight loss. You could try the journey on a non-work day to see how you manage. If you can no longer drive to work, you may need to find alternatives, such as working from home or finding support with travel. Some employers may offer a lift-sharing scheme for colleagues.

After a stroke, you are not allowed to drive for a minimum of one month. After this, depending on the type of stroke you had, your type of disability, and the kind of driving licence you hold, you may be able to start driving again. Some people might not be able to drive for a longer period or may lose their licence. If you used to drive for a living, this will directly affect the work you can do, and you might need support with career changing and job seeking.

If you are unable to drive to work, you could look into funding from Access to Work, or free or discounted public transport.

Returning to work

Returning to work after a stroke can be a big decision and a challenging transition. It is important to take your time and not rush back to work too quickly. Financial or career pressures may influence your decision, but it is crucial to only return when you feel well enough and have a plan in place with your employer.

Planning your return to work is essential, and you should communicate your needs and adjustments with your employer. Consider a phased or gradual return, starting with part-time hours and building up to full-time. It is also important to be aware of the impact on certain benefits you may have been claiming.

During your recovery process, it is advisable to keep in touch with your employer and communicate your needs and limitations. They may want to speak with your healthcare provider to understand how they can best accommodate you in the workplace. Additionally, occupational therapists can provide valuable support by discussing your previous work and helping you set realistic goals and expectations for your return.

Remember that every stroke is unique, and recovery varies for each individual. While some may never be able to go back to work, others may just need some assistance and reasonable accommodations.

Frequently asked questions